Spinal Muscular Atrophy is a genetic disorder that affects around one in every 6,000 babies born.
One child in Norway has the disorder, and a fundraising 5K Run/Walk is planned for this Saturday to raise funds for SMA research. Blake Sternhagen was diagnosed with SMA Type II, which significantly affects his nervous system and greatly restricts his muscle motor skills. There is no cure for SMA, which is why volunteers are planning the 5K fundraiser to further research.
â??Predominantly, it starts with the weakness of their legs, and then gradually progresses to their back, arms, affecting the neck control, head control,â?? said Blakeâ??s mother, Gwen Sternhagen. â??It can also affect swallowing and respiratory function, as well.â??
The event will be held at Marion Park in Norway with registration beginning at 8:00 a.m. and the official race starting at 9:30 a.m. You can also donate online here towards SMA research. More information can be found on the Believing for Blake Facebook page.